❄️ February 2024 Update ❤️

Hi everyone. It’s mid-February, time slipped away from me. The main message to you all is hello, I’m still here 🙂 working to get back to 100% and staying positive.

Last month I had 10 days of radiation (20 rounds total). The lumbar spine and S1 showed cancer growth and the recommendation was to zap it. They zapped it all right. That radiation took me out of commission for quite some time. The radiation was from my L1 down to my S1 and from both my front to back and back to front. Anyway, it was a lot of radiation and I did not do well with it.

Nancy came out for a week when Glen was traveling and drove me back and forth. I’m super grateful for that. She also helped with so much stuff around the house I can’t begin to thank her properly.

The second week of radiation was hard. I became nauseous and could not keep anything down for over 24 hours. I got some extra IV fluids and switched my diet which helped some. I’m still not a fan of eating right now. The further I get from the radiation the better I’m feeling.

I turned right around from the radiation to start IV chemo. I have a new medication now (previously I was taking Xeloda oral pills). This will be every 3 weeks and an infusion so I have to go in to the cancer center.

The new medication is called Enhertu (Trastuzumab deruxtecan). The type of medication I get is based on my cancer sub-type. It turns out that this medication was just approved for my sub-type in summer 2022. Read that again. Prior to summer 2022 this medication would not have been an option. This is why research for new treatments is so critically important. Since I have been diagnosed there are at least 3 new medications approved to treat metastatic breast cancer. Please continue to spread the word about the importance of research for MBC.

Dance competition season has begun and Glen was taking Maddy to Colorado Springs for the weekend for dance. We felt like it would not be a good idea to have me stay home alone after this infusion. Ann came out and took me to my first infusion and then stayed through the weekend. Fortunately, I did not have much in the way of side effects – just fatigue. So, Ann and I had a lovely visit. She also helped with finishing up some errands and doing some shopping. We are grateful for her taking the time to come (even if all we did was work and sleep!).

So, today I’m feeling “ok”. I don’t have to take any medication regularly. I do have a fentanyl patch for pain. I’m mainly trying to get my right hip back in shape. The good news there is that both my physical therapist and acupuncturist think the problem is a very tight hip flexor (not cancer). If that really is the case then hopefully I’ll be walking better soon.

I’m super appreciative of my neighbors who have driven me to appointments, ran to the pharmacy for prescription pick ups, brought food or coffee, and sent cards. It all means a lot to me and my family. We appreciate you.

Tomorrow I’ll be watching the big game 🏈 (hopefully feeling well enough to attend a watch party). Of course my beloved Packers are not in the running, the commercials should at least be entertaining.

Be well, be kind and get out there and move as best you can. Sending love to you all in this Valentine’s month and beyond.

Onward!

3 Comments

  1. ultimatesurvivorprime's avatar ultimatesurvivorprime says:

    Hi, Honey! Thanks so much for the update. It looks like your schedule is pretty busy with all the treatments. So sorry that some of them make you nauseous.

    Charlie’s brother, Jack is also getting radiation and chemo for his prostate and bladder cancer, and it makes him very nauseous too. They started giving him a pill before and after his treatment and it worked to control that.

    We reached out to find out what it is and he said it is Qxybutynin,15 mg…he takes one the day before and one an hour before treatment. Maybe that would help you. They removed a tumor the size of a tennis ball from his bladder which they found after removing his prostate.

    It is fantastic that there are new options for you now, and hopefully as you need them in the future. So sweet of Evelyn and her boyfriend, and your sister to jump in and help you, while our Dancing Queen, Maddy, dazzles again.

    We are thinking of you, praying for you, and missing you all.

    Much love,

    Janice & Charlie

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  2. jillmoretti's avatar jillmoretti says:

    Donna, you are my hero! Dave seems to be getting a light sentence, but we’ll see. I found your post extremely touching, and wish we could be there to help, too. it may help to know we’ve been cooking for a good friend with 3 years of stage 4 breast cancer who drives to Boston (from Wakefield) two weeks in a row with one week off. Soooo sucks, but she smiles every time I see her. Somehow.
    Stay stong, we love you and think of you lots. Good job to your kids!

    Jill

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  3. Leysia Palen's avatar Leysia Palen says:

    Onward, indeed!! Here is to more strength, a raging appetite, loads of fun, and miles of walks.

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