Here we are again. Another month has passed and I’m posting. I thank you all for reading and for your interest. I hope you also learn a tad bit about this hideous disease and share with others.
But it seems like, yes, another month has passed and there is not much to update. In the grand scheme of life, not much has changed for me. (Side note, my recent scans were “fine” and I continue my current medications. Yay!)
Life is busy. There are things to do, places to go, people to see, and dreams to achieve. One day blends into the next with the punctuation of weekends when we can stand down a bit – unless you are retired. (My retired cousin says ‘everyday is Saturday.’)
Seriously, I feel odd sometimes writing these updates because to many of you, there is probably not a lot of new information.
When I first got this diagnosis it was terrifying to me, and also to my friends and family. Here I am 3 years and 8 months later – still alive, still working full-time, still traveling. Still living like many of you.
And yet. I live in 3 month increments. I have no idea if the table will turn and the next set of scans will be the ones that show the cancer has out smarted the medicine. Will this be the month I have to change my medication – and if I do, will it work? What kind of side effects will it have?
So far, I’ve only had to change medication once. That’s pretty f-ing amazing in almost 3.75 years. Hooray for science!
The internal anxiety I have is always present. I’m able to swallow it a lot because work is distracting. My friends allow me think of other things. Being with my family helps me live in the moment.
Today I met with my oncologist. There was a real possibility I would change meds. He said that with the data he has we should stay the course. So, no change in anything. Same meds.
We talked about what is next. I have two options for treatment (Xeloda or Taxol). When that stops working I’ll go to Enhertu. When that stops working I’ll go to whichever of the ones I didn’t chose (Xeloda or Taxol).
There is no cure for this, just treatment. The idea of changing treatment is terrifying – to be honest. Do I show that? No, because I don’t think about it a lot and there is not point in worrying about something out of my hands.
That doesn’t mean that everything is smooth sailing. It’s just not apparent. I have a lot to do, a lot of plans and a lot of new memories to make.
You have that as well. We just don’t often think about the time when we can’t do it, or when we run out of time.
We all run out of time, some of us just know we have less time that others. Very recently someone Glen and I know died from metastatic breast cancer. She and I communicated via email and she was really supportive when I was first diagnosed. She leaves behind a husband and 8 year old son. Her mortality is my mortality and the same for everyone else with this disease.
This being said, I have supreme confidence in science and am looking forward to annoying you all for many years to come with boring posts of non-information. 😃
Second line of treatment (since June 2022):
- Fulvestrant (injection monthly)
- Ibrance (oral daily)
- Lupron (injection monthly)
- Zometa (infusion quarterly)
So sorry on the loss of your friend. It’s great you could support each other.
No change is good news. Keep at it and keep your positive attitude. Sorry we didn’t get to connect while you were in town. Hopefully next time.
Thank you, Donna. As just one member of your supportive audience, we are here for you. You live a life with a mindset that I aspire to.
Keep on posting whether good or not so good news! I want to hear life as you know it. Your strength and positive outlook is inspirational! I’m so glad to hear your hip is healing!
Steady Betty is good to hear about! “another month has passed and there is not much to update,” is a positive and I hope little change allows space for the things you want to do go, see, and build towards your dreams. For me, I live in 3-month increments with you – cheering, sniffing, and supporting as I can.
Thanks for this, Donna! It’s so helpful to hear about the “journey” that you never signed up for. Plus, I look mahvelous!